“I am 13 and have Spinal Muscular Atrophy which is a rare neuromuscular disability. This means that the signals from my brain don’t get to the muscles in my arms and legs properly. Consequently I cannot walk and need twenty –four hour support for all of my personal care. I have an electric wheelchair which has a controller that can connect to a computer using Bluetooth, so I can activate and use the cursor on a computer screen with my wheelchair joystick because I can’t use a regular mouse.”

Ben's spot
Hi, my name is  Ben

​Sometimes it’s good to do something fun and also raise funds to support young people who have a life threatening or terminal illness. You may have a brother, sister or good friend who has just been diagnosed or going through treatment and this is a good way to support them and others like them. The Santa Fun Run is a fantastically festive family event so why not be one of around 3,000 Santas taking to the paths of Victoria Park in London’s biggest Santa Run!

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